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Wednesday, September 14, 2011

update sept 14th



I am pleased to finally announce that Ajay has been moved to the general floor as of Tuesday! I hesitated to say earlier, due to the always wavering uncertainties of modern medicine and Ajay's reaction to it! I had hoped Ajay would stay once moved, but there was some small set backs that might have kept us in moderate care longer...but as Ajay has proved time and time again, I need to trust Ajay more in his abilities and quit worrying. He moved to the general floor and stayed! He had a swallow study on Tuesday, as well as a barium study to see if his feeding tube could be moved from his intestine to his stomach, and to also see how he could tolerate varying degrees of food and textures. He passed both studies, only to aspirate on good ole American water! No big deal, we thickened it and he does fine. He is eating/drinking small amounts of pediasure with thickening flavor, as well as con gee which our Chinese American nurse so graciously made just for him! He loved it and knew exactly what it was when he saw it. It was such a precious moment! ( I had to taste it too as his mom of course to make sure it was "okay" to eat...it was fabulous! Just like China!! We miss China so much!) So for the last 2 days, he has finally stopped vomiting, and feeling miserable. (vomiting and feeling miserable was due to unknown causes but I think it was too much food too fast through the feeding tube and increased protein in his diet by 75% which is why I believe he was so sick since last Thursday...every medical test came back 100% perfect...but I am just a mom and they said I was wrong with my theory until I said turn the the whole thing off and go back to the original formula for 24-36 hours and see how he does...well again, this Mom was right :) He wasn't sick anymore when they took all that added protein out and decreased the flow of feeds...whew...only took one argument with one doctor, and I won that war....) Anyway, we are on our way, and Ajay is a different little boy. He is laughing, saying 'Mama' all the time, and even said "Daddy" on Monday. His voice is somewhat rough from the tubes and vent, but seems to have his vocal cords without damage. As all of you know, he doesn't say too much but Mama, but is now moved on to Daddy. We are behind in speech and language, if ever he will speak, we are unsure, but his signs are amazing and he is such an expressive child that we are not having any trouble with ASL.
 
Ajay has been very busy with Physical Therapy, Respiratory Therapy, Speech Therapy (swallow studies) as well as meeting with Dietitians for diet consultations and continued monitoring of his oxygen and blood gases/levels. He has amazed and fallen into the hearts of most everyone in the hospital. All of the doctors have come to see Ajay over the last 24 hours and are AMAZED at how well he is doing, and has truly beaten the odds. They admitted today, that they were "unsure of the outcome" many times....I respect the doctors here at UofM and their ICU team committed to Ajay, their honesty,love, knowledge has brought him thus far today. He is living proof that miracles still do exist, and the abundant blessings we feel with God's continued presence.
 
Doctors will continue to monitor his oxygen, which has been lowered to only set at 2 liters. He is off all pain meds, and they are watching for stomach profusion, and normal bowel sounds as he is eating small amounts of food. With prolonged use of the ventilator, medications, etc. the stomach will need some time to start working on its own again. So far, so good.....he is a happy camper!
 
We finally see the light at the end of the tunnel and although have no plans for discharge at this time, I am confident that it won't be too much longer with the progress Ajay has made in just a couple days. I will continue to update blog for those who are still checking in :)
 
 

5 comments:

  1. Hi Carrie,
    so pleased to hear that he is doing so well. Praying he continues to improve and can come home in the not too distant future!
    I've been reading your blog and the New Day blog before that for a long time-and praying for Ajay, but haven't commented before:-)

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  2. PRAISE THE LORD GOD ALMIGHTY!!!!!!!!!!!!!!
    This little boy is never far from the front of thoughts, prayers and heart!!!!

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  3. YAY YAY YAY YAY!!!!!!!! A regular floor! Hallelujah!
    Oh sweet Ajay we have not stopped praying for you and will just keep on praying everyday!
    Way to go momma!...sometimes as mommas, we just KNOW, huh?
    So thankful for all these praises and answered prayers!!!!!!!!!

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  4. What beautiful news. THANK YOU JESUS! I'm so happy that he's back in the regular ward... it makes me so happy I could cry. The foods he ate in China weren't all that protein-filled, so no wonder his stomach didn't like them that much.

    I'm so amazed by his sign language. You're a brilliant little boy, Ajay. And a miracle. I love you very, very much.

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  5. Oh PRAISE GOD, this is just WONDERFUL news!! I have been thinking of Ajay SO much this past week. Especially with the passing of baby Paige at New Day, and then the recent 'grim' report given by the doctors and surgeons for baby Carissa. I couldn't help but remember that same report for (Judah) nearly a couple years back now. And look what a miracle baby he STILL is!! Beating the odds and proving the doctors wrong... in a GOOD way! LOVE IT!! All those therapies sound exhausting, but if anyone can fight through them with flying colors, AJAY CAN!!!

    Keeping you close in thoughts and prayers for that next big praise report... DISCHARGE day!! Sounds to me like you're heading in that direction sooner than later!

    Blessings and Hugs,
    ~ Tanya

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