update July 6, 2012

Ajay has made progress in the right direction over the last 2 weeks
and is on track for discharge soon! We are now at 3 liters of regualr
oxygen and Bipap (full ventillation for support with a mask) at night
for 12 hours for complete life support. We are having the discharge
meeting on Monday and will discuss a new plan. In the meantime, RT
will be providing gear this next Thurs for me to learn and become
familiar with so that I can take home the exact equipment when we are
released. It will give me a few days over the weekend to study it and
be 100% comfortable before leaving the hospital. Since the last post,
Ajay had a sleep study because I noticed he wasn't breathing when I
was here late at night. After bringing to the nurses attention on
several occasions, they decided to do an actual sleep study. The
results were more complex than I anticipated, in that he was diagnosed
with Obstructive Sleep Apnea. The amount of support he now needs is
more crucial then ever to keep him breathing at night when in full
restorative sleep cycles. His respiration's dropped to zero 3x during
the study. So, although he is doing well in the day, he can breathe
regular oxygen in the daytime with bipap close by if he starts to drop
in his oxygen levels and respiration's. Even though its one more thing
to add to the list of Ajay's needs, I am glad we discovered it while
here at the hospital.

If everything continues to go well, our meeting will be Monday the
9th, RT will deliver equipment on Thursday the 12th, trial run over
weekend and continue thru Monday the 17th, with hopes to go home
either Wed or Thursday July 18-19th. We have tons to prepare for but
we are both thrilled that home is now coming to fruition.

I will update further details after Mondays meeting with the team.