I am sad to report that the test results didn't come back as expected. Its taken me 2 days to find the words to try explain my dispair and extreme hurt in knowing my little AJay isn't getting better. His results revealed that his Malaysia is severe. Both Brochial and Trachial Malaysia are in extreme state of disabling Ajay from ever being able to get off the ventillator at his current settings. His lung has not improved since July 12th, his vent settings are higher, his secretions are extreme and he is being suctioned every 30-60 min. and his feedings are intermittent because his bowel and intestines are not doing their job, which cause him extreme pain and discomfort.
At this time, we are trying to think about his quality of life, his life on a ventillator and trach and whether or not a trach would make his breathing any easier, preserving the trachea. We are more than devestated by this news we received late Friday night, and are doing everything in our power to get several opinions medically and spiritually for the next steps.
We met with the Palative Care team here at the hospital and are arranging a team meeting for Ajay and his continued care Monday and Tuesday.
This (as you can imagine) has been the most difficult time for both Paul and I. We continue to believe that God will lead us and Ajay to a peaceful answer.